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Choroideremia needs your help!

In the mid-1990s, a young Choroideremia sufferer started an email support group for people with Choroideremia and their families. As more people found and joined this email list, ideas started circulating about the possibility of starting our own Foundation dedicated to finding a cure or treatment for Choroideremia. Some of the original members met at the Visions 1998 and 1999 conferences in Chicago and Los Angeles. Enthusiasm grew as more ideas were exchanged via email and phone. Thanks to the efforts of many volunteers, the Choroideremia Research Foundation was founded and incorporated in early 2000. In the few years that it has existed, the Foundation has grown considerably, with members from around the globe. The Foundation continues to be an all-volunteer organization, allowing us to direct over 90% of funds raised directly to the researchers who are working on a cure or treatment for Choroideremia.

Choroideremia's Mission Statement

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With a cure in sight.

Please help!